Please Pray!

This isn't actually for Emma but I feel like there are so many that read this and pray for her that we could send some of those prayer else where too. A lady named Aggie that is on the Spina Bifida forum that I belong to just had a little girl Catherine who had to go into surgery for a revision on the shunt they just placed in and she did not make it. If everyone could please just say a prayer for her and their family.

It would mean allot to me! Thanks everyone for reading.

Very neat wanted to share: SPINA BIFIDA AWARENESS

I was excited when I found this because I really wanted to find something to participate in helping spread awareness and raising money to understand this disease better so here it is...

So we just missed the WALK-N-ROLL for Spina Bifida and it was the first time for them to do it here in Arizona. So I just wanted to say next year we will for sure participate in this to help raise money and spread awareness. I thought it was important to let everyone else out there know about this even though it's a year away for next year.


Welcome to the Spina Bifida Association of Arizona, a nonprofit 501(c)3 organization working to enhance the quality of life for those living with Spina Bifida as well as promoting the prevention.

2009 Walk-n-Roll for Spina Bifida
Dear Participants, Donors, & Sponsors:

Thank you all for the time, money and support you gave on October 31st and before to help make our first annual Walk-N-Roll for Spina Bifida successful! Because of your dedication and work we were able to collect over $31,000 and counting! We are excited to add this new event to the current line of events that we provide here in Arizona.

The Spina Bifida Association of Arizona is dedicated in promoting the awareness of Spina Bifida as well as helping make life a little easier for all those affected. Now because of all your hard work we will be able to improve the programs and services provided.

We are grateful for the generosity of all our sponsors that helped make this event possible. With the help of our presenting sponsor, SBGenetics along with all other sponsors we were able to end Spina Bifida Awareness month with a bang. Thank you Hard Rock Café AZ, Trader Joes, Dunkin Donuts, TropicalSno as well as all other sponsors who made this event possible.

We are also grateful for the support of all the volunteers that helped with the setup and logistics of the event, including all board of directors with their tireless efforts.

Warmly,
Ben Scanlan
Chair, SBAAZ Board of Directors


http://www.spinabifidaassociation.org/site/c.liKWL7PLLrF/b.5522113/k.A626/October_2009_WalkNRoll_for_Spina_Bifida.htm

Doctor's appointment

So yesterday we had our doctor's appointment, which really started off asking me question about medical history and if I have had any problems so far. Then we started talking about my lovely due date again and I told her when I actually sat down and thought about ovulation date, then we started talking about the ultra sound and measurement's so if we went by the due date of Feb 16 she would be 16 days behind which make her 6 more days behind then she was at the MOM's study when we had ultra sound done there (which has been a month now). BUT....if we use the MOM's study due date of March 1 that put's her I think 4 days behind which isn't so concerning. So what this means is that the want to monitor her closely and make sure she doesn't keep getting farther behind which could cause concern that something else could be wrong.

So I will be going in ever two weeks for an ultra sound to check where she is at, I will be going back in on Nov 30 for ultra sound and then again on Dec 16 for the MOM's study. So we need to pray that she doesn't get any further behind then what she is and if she stays on track of just falling behind the same amount of days all the way through then we are ok.

She did say usually what happens the abdomen will show the smallest measurement which actually her head did which usually is opposite. Her abdomen is showing at about 24 weeks and her other body parts are a little over 24 weeks and her head at 23 weeks. So she said it could just be the case with the wrong due date at this point but as long as she doesn't keep going further back. Her ventricles have increased since the MOM's study as well they where a 12 and now it's at 14 so lets hope that doesn't get to much worse. Side note: that is to be expected with the head growing from what the doctor had said and still not concerning.

Well other then that everything else looks GREAT..lol

Now this picture will have to do until I go over to my Mom's house to use her scanner but I couldn't wait to share this picture because it is SOOO cute! It totally looks like she is smiling at us.

So the Ultra sound went good, but I have learned something very important about Emma that I have come to the conclusion of and that is she will be 50x more stubborn then her brother and I will tell you why...So far every ultra sound we have when they go to look at her face she will put an arm, a hand and yesterday she decided to curl up into a little ball a put her feet in front of her face. The tech had already gotten all the pictures she needed but was trying to get us some good pictures to print out for us and Emma didn't want to cooperate so the tech gave up. Now that has happened three time already, which goes to show that she isn't even born yet and she is already getting her way. I am in for some trouble!!

So a doctor had to come in to verify the techs work and said the main thing they are looking at was the heart and it looks GREAT! She also said that her measurement are looking Great too and she is growing very well she weights 1 LBS 8 oz but she is averaging at 24 weeks and 6 day so the tech said she is about 2 weeks behind the due date of 2/16/10 so I guess that goes to say it's a good thing we are sticking with the mom's study due date then. Oh well...

I will put more pictures up soon.

Just a small note : )

I just want to say already there are so many people who love our little girl and she hasn't even come into our world. Nick and I are so lucky to surround our selves by all these loving people.

I know Emma will feel the same way too!


Oh and Nick has this Friday off so I rescheduled my ultra sound so now he will for sure be going to that, and my step mother I guess you could call her because that's basically who is : )(and I mean that in a very loving way <3)is throughing Emma a shower with her side of the family and my mom wont be able to make the diaper party on the 12th so she is throughing one in January with the lovely gals from her work so that is very exciting to know all these people care and want to help out.

Baby Shower/ Diaper Party!!

So Nick and I thought it would be fun to do a Diaper Party so everyone can come and enjoy the fun. So we decided on December 12 (which is the weekend after my birthday ;D)and will be doing it at noon so will can do barbecue and cake of course. I will be sending out Evites instead of through mail.

Payton and I will be going to Target this morning to do our registry and then since Nick has Friday off we will be doing Walmart's registry together then. This is the fun part I don't know what it is but lol it's fun.

Oh and I will be sending the Evites the end of this week so I can finish the registry before I send them out.

Whirl wind week!

So it's Friday and we have gotten through this week. For what ever reason the things that have come up this week was extremely hard for me. I was able to speak to the doctor about why we can't do the amino since I will be there already just to see where we are at, AND his answer is because she could still have mature lungs but be at gestation of 35 weeks which would give us other problems basically she needs to say in and bake longer and longer the better. So I understand and know that it's the best thing for her which that's what I want but I think why I got so frustrated is because there was a lack of communication between me and the MOM's study and of course I made that know to them. So for my orginal due date that puts me at 37 weeks Jan 26 (a Tuesday) and I told them since my mom already booked her plan ticket that I would like to come on Jan 30 which is Saturday and I would only have to hang out an extra week. Now of course if I start showing any sign's of labor I will have to come earlier.

So orginally I had an Ultra Sound and appointment on Novemember 16 and wasn't able to schedule late enough so I can make sure Nick will be able to come. So I split the appointment into two scheduled the ultra sound the week before and kept the doctor appointment at the same time. I hope that helps so he can make it work with his schedule at work. I do have to say though I am looking forward to the Ultra sound my doctor I see and the best ultra sound I have ever seen. They have a flat pannel TV on the wall that you can watch and it's amazing because you can actually tell what they're looking at.

Last happy note: Emma is still moving and kicking like crazy

SOOO Frustrated!!!!!!!!!!

Ehhh! I feel so frustrated right now, so I talked to the doctor from the MOM's study and basically he said that the entire team of perinatologist reviewed my due date and they couldn't come to an agreement so there solution is to fly me out on the 37 weeks of my original due date which is the January 26 and have me wait until original date for amino and C-section which is Feb 8 because they if they are wrong and I do go into labor at least I would be there instead of here. Which ok I get it but why can't they do the amino when I get there to see where she is just in case she is ready and I was right instead of waiting. I mean of course I don't want them doing anything if she isn't but wouldn't hurt to see...Right? I guess I am so irritated it because that's more time I have to be away from home, more time away from Payton and it breaks my heart to be away from him. I know he will be fine but it's going to be so hard being gone so long and then coming home with a baby. Which of course wouldn't be any different then staying and getting the surgery which let me say the thought of all that too was hard for me to even think about having to deal with.



So I guess I will have to see where it goes and what happens. This is so little but feels so big and makes me so upset I guess that is all apart of being pregnant and having extra emotion.