Thursday, October 8, 2015

Funny Now...

Have you ever had one of the moments when someone has caught you at a very bad time and you completely over react then you normally would?

So this is the background of the story. Payton goes to Kumon twice a week and we usually are able to park in the handicap spot right in front of the Kumon center. This particular parking lot has very tight parking spots so any time we don't park in the handicap its very hard to get her out, so it makes my life a thousand times easier. So this particular space is on the end so next to it is a loading zone and then nothing. So what has been happening these parents have been parking right in the loading zone because they don't want to park some where else and get out of the car to go get their child when they are done. So I have been actually going to there cars and letting them know they are parked in part of the handicap space and my daughter needs this space to get in and out of the car. 

You really wouldn't believe how many people do it all the time, and I had two Moms who did it twice to me even after asking them not to. So I have actually taken two pictures like this one and sent it to Broward county Sheriffs office because I brought it up now twice to the people at Kumon asking them to remind parents that is not a spot to park in and nothing has happened. So a couple of days ago we went to Kumon and we parked and Emma and I got out this day and decided to go work on homework at Zona Fresca couple stores down.Well Emma wasn't being good and she had a full blown melt down wailing as we go out of Zona Fresca all the way back to the car. So we get back to the car and of course someone was parked again in the damn loading zone. So of course I walk over excuse me can you move we need to get into our car and your parked in part of the handicap space. So the lady moves and we get into the car. So 5 minutes later this
Lexus pulls up right into the loading zone. Now sometimes people will pull into the loading zone and just drop off and leave but not this car. So I was pissed, because this is now the second car and what was even worse was this person had a Handicap place card. Now I was already very irritated about this situation with Emma. 

So I get out of the car and their window was already open. 
So I say: Excuse do you know you are parked in part of the handicap spot and we need this room to get in and out of our car.
The man in the car says:  yeah I have a handicap sticker
Me: Yes but I am already parked in the spot sir you can't park in the same spot someone else is
and at this point I am getting mad because the guy immediately got attitude with me.
Guy: who are you I can park where ever I want you don't make the laws.
Me: Excuse! You are parked illegally right now and of all people who has a handicap place card should you know better.
All the guy kept saying to me is I don't make the laws and he could do basically whatever he wants. Now this guy must have been early 60's or late 50's and his wife was sitting in the passenger seat telling him just to move and it wasn't worth it, and then they start arguing because this guy wasn't going to move. 
So I say thats fine please just stay where your at so I can call the cops and they can issue you a ticket since Im not the law! 
Then the guy got really mad and I couldn't even tell you what he said at this point because all I was seeing was red. I then said to him he should be ashamed of him self because I need this space for my daughter who is in a wheelchair and I actually went to the back on the car pulled her chair out and I said see...
The man was so in

Monday, October 5, 2015

Half way there!

So I wrote a quick little update about Emma on here please check it out.
We love you all thank you for your support.

Sunday, September 27, 2015

Our story, and why we need your help.

I tend to forget most don't know so let start at The Beginning... 
At 18 weeks we had our first ultra sound to find out the sex of the baby. We found out that day that our precious baby would be born with a birth defect that would effect her for the rest of her life. That changed our lives forever, Our daughter would be born with Spina Bifida. The next day I saw a specialist and I was told that she would be paralyzed from the waist down, she would be in a wheelchair for the rest of her life and she will possibly be mentally delayed and her quality of life wouldn't be so great. She also went as far as to suggest to abort asked me to seriously consider it. After that day I went home did all the research I could and found that kids with Spina Bifida are amazing and grow up to be productive members of society that have jobs and kids. We decided that we wouldn't give up on her.

We have been incredibly lucky to have family surround us help during this time.

We decided to become apart of a study for babies with the birth defect Spina Bifida and the study was to find that repairing the back of the baby while its still in the mother then close the mother back up and wait till term compared to just closing the back after the baby is born. The study was a 50/50 chance to get the surgery but the catch was that the study was in San Fransisco and I would have to have another adult to stay with me during the whole pregnancy from 24 weeks till you give birth and then however long the baby stays in NICU on top of that. So our problem was Payton and we wouldn't be able to pay our bills if Nick left. It turned out we didn't get elected for the surgery which was devastating but I was soon happy to spend the rest of my Pregnancy home as a family and I didn't have to leave Payton. At 34 1/2 weeks I started having allot of contractions as the week progressed they got worse so since we remained in the study we had to fly back to San Fransisco to have Emma there. So everyone started to become worried that I would end up having Emma in Phoenix and not in San Fran like we wanted because the doctors are the best there. I got on a plan 35 weeks with my Mom and stayed there for 2 weeks before I gave birth to Emma. I was separated from Payton for a total of almost 6 weeks and it was one of the worst things I have ever gone through to be away from your child so long because he was 2 at that time.

We stayed in a house similar to the Ronald McDonald House the whole time. Emma was in the NICU for two weeks.

Emma had her first surgery at one day old to close her back, one week old she had a shunt placed in her head. At 16 months old she had to have a revision of her shunt again because it failed. After that at 2 she had eye surgery to correct her eye. Next was at 4 she had major back surgery for detethering surgery and was in the hospital for a week. And last was this year she had  tendon release in her leg, foot, and toes.

My sweet baby girl is trying so hard to bounce back from this last surgery. I have been beating my head into a wall trying to get her to do therapy and its so difficult. She also had bent the metal on her brand new HKAFO's Shriners made so we had to go back to Tampa 4 hours away to find out that they would have to be rebuild so they took another 3 weeks. So they fix them and yes they are great fit her perfect. Ok Emma doesn't like being in them now because she is working so much more now since she is weaker and doesn't want to wear them so we fight about them. The problem is she goes to school now just in her chair with no way to get up and move around and get out of her chair. Well the solution we came up with is the Mobile stander this will stay at school during the week and brought home on the weekends

This one in the picture is the actual one we want to get her and is called a Rifton Dynamic Mobil Stander. This allow her to stretch her legs and strengthen all at the same time and the best part is she will be standing tall with her peers. She will get in and out of it through the day. Now the worst part of Emma's Spina Bifida is her head aches and right now she has had allot, along with allot of back pain. Come to find out it's probably her chair. So the next I find out is that typically kids need a complete modification of their chair ever 2 years. She already needs a bunch of parts like new wheels, cushion, screws, brakes need to be fixed, back cushion. So possibly looking at almost the cost of a new chair , which is a real possibility right now because she has beaten her chair up. So if the cost is the same we will request for a new chair instead. We are looking at the Colours Razor Blade Jr wheelchair.
so this is where I ask you for your help. We started a GoFundMe for Emma and we are asking for any donation you are willing to give us. The other part is I ask you to share our story we your friends and family and spread the word. Our family is so grateful for everyones help and support, from the bottom of our hearts we thank you.

Saturday, August 22, 2015

Goodbye Preschooler

Hello Kindergartner

 Wow I can't believe how long its been since I've written a blog. Its easy to shut the whole world out when you have so much going on, I tend to focus on the day to day stuff. Well here we are the last summer before my baby goes to Kindergarten and I have no more kids at home. Its hard to think how fast the time go's by and before I know it they will be grown up.
I know come Monday morning first day of Kindergarten I will be crying it's a guarantee, but they are tears of joy for the last five amazing years we have spent together. 
She has been through so much in such a short amount of time and she has so much Love and Strength and Fire in her that it makes me so proud to say I am her Mom. 
And of course I can't forget about Payton who amazes me all the time.
Payton has grown up so much, I can't believe he is 8 already. He is going into 3rd grade and at the end of the year Payton received awards and Student of the Month for his grade for Honesty. He was tested at the end of the year for reading and math. He passed the 5th grade reading test and the teacher couldn't test him past that. He is so bright and always wants to work hard to make everyone proud of him. 

Thursday was Open House to meet the teachers. They had the grades split for different times.
So we saw Emma's teacher first. Emma was super excited and said she loves her.
Her teacher is super sweet and seems like it will be a really good year for her.
Then we went and saw Payton's teacher later, and at the end of last year's school year a third grade teacher he met and he really liked her and told me he really hope he would get her and turns out he got her. She is also really great teacher and seems like a good match for Payton. He also got two of his good friends in his class so he is so excited for 3rd grade.
And So am I!
They will both have an awesome year I know it.