Wednesday, January 19, 2011
It is just so refreshing when an appointment just goes the way you want it to. Today we had our appointment for orthopedic. The purpose of the appointment was to see if we can move to nap and night time for bar and shoes and I was hoping we will figure a plan out for support for her ankle. Now of course every time we go we wait at least an HOUR! and of course this appointment wasn't any different but it went pleasantly well. He said her foot looks very good and suggested to message and stretch her foot a little more but said she doesn't needs the shoe's any more and we can move to AFO's and have the left foot a little more elevated because gravity just cause's her foot to come down and then for the right she will only need to wear when she trys to walk and suggested to wear the AFO on the left at night. This is all the news I wanted to hear but better because we can finally just be done with these shoes.
So next step is getting a casting and ordering the AFO's and then some shoes and our little girl will be rocking and rolling. I am just so excited because I really feel like she will be able to start being a little more independent sooner rather then later. She wants to stand on her own so bad she can tast it and she will finally...be able to. So I bet some of you do not know what AFO is or what they look like
the AFO stands for ankle foot orthosis, hopefully we will be getting them first week of February but we will see since we haven't gone in yet.
hope everyone enjoys the pictures and loving the great news just as much as we are!
Tuesday, January 4, 2011
Wow last year was just a crazy year for us, and I just think wow we are finally able to just catch our breath and relax and not worry so much. Just thinking back being away from my son and husband for almost 6 weeks, and being in the hospital day in and day out for two weeks was probably one of the hardest things I have gone through.I just remember thinking all I want to do is take my baby girl home and be a family, and now look at us. Emma is here with us doing awesome and we are a happy family.
It's a crazy thought to think Emma will be turning one soon. This year has gone by so fast I feel like I blinked and she just grew up in front of my eyes. Lets all pray that this year will be good to us and no visit to the hospital or serious doctors appointments. This year should be less crazy with the doctor appointments then last year, which is such a relief.
I have been going back and worth with my self on whether or not I want to go back for the 1 year evaluation for MOM's study due to the MRI that they want to do. I have had bad feeling about it since we got back home. I called and talked to the RN for Emma's Neuro surgeon about whether or not she will need an MRI for her one year eval here since she has to see all of her doctors for a one year check up. She told me they do not do an MRI unless they think something is going on and there is a concern. Which on a side note I was informed that her doctor will be moving to New York in February and she needs a new doctor. I was extremely worried because they told me the only other Neuro Surgeon was Dr.Bristol who we saw when I was pregnant and she was just awful, but luckily turned out it was the only other doctor at St.Joes so and we will be going some where else. Anyways back what I was saying before about the MOMS study eval is, the RN talked me into going and then all the sudden I found out today....WAIT FOR IT..... MOM'S STUDY IS OVER! Yep thats right its over and the information has not been public yet but from what I understand they have decided that the prenatal surgery out weights the risk and they will start doing it. They are still having everyone that participated in the study continue to come back for the 1 year and 3 year evaluation. I honestly didnt know what to think because when we went they really made it seem like there wasnt much that out weighed the risk and I truly felt it wasnt right and really hoped we wouldnt get the prenatal and was total fine when we found out we didnt get it but now I just dont know what to think. I guess the lesson in that is its done and she is doing great and I shouldn't think about it or worry but its still blowing me away!