Riding The Waves: Spina Bifida Walk-N-Roll

Tuesday, July 20, 2010

Spina Bifida Walk-N-Roll

I have enrolled Emma in the Walk-N-Roll. Our goal is to get $500 in donations and we have 3 months to reach our goal. I am very excited to help make a difference to help find a cure. Here's the link to donate money for Emma to help the cause.

http://www.sbaazwalknroll.org/faf/r.asp?t=4&i=428635&u=428635-297520543&e=3566144715

This year's Spina Bifida Walk-N-Roll & Picnic will be October 30 at Steele Indian School Park and its an all day event and we can not wait to participate. Here's the link for more information

http://www.sbaazwalknroll.org/faf/home/default.asp?ievent=428635&lis=0&kntae428635=469BBF052008406BB4E2004C90C8A3FB

I will keep everyone updated on how much money we've received in donations.

Yellowribbon-Spina Bifida Pictures, Images and Photos

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Little history..

We found out Emma has Spina bifida at our first ultra sound and we where sent to see a specialist. Our experince with this doctor was aweful, she gave us a grim outlook saying our daughter will more then likely never walk and will be mentally handicaped and should seriously consider our options of whether or not we want to continue with the pregnancy. After that day it became my mission to give her the best life I could possibly give her. That started with deciding to become a part of a study/trial called the MOM's Study (www.spinabifidamoms.com) we where selected for postnatal surgery. She was born February 11 and a week later had her shunt placed in. She has done so well, she is able to move both legs and has movement in right foot. We are truelly blessed and are looking forward to watching her grow up.