Riding The Waves: Thursday..

Tuesday, May 3, 2011

Thursday..

So it turns out our little Emma Lou will be having surgery, the Neuro surgeon decided we will go as planned for Thursday. We check in at 7:30 and surgery is at 10am.

The plan is to go in take the shunt apart if all looks good with that then he will be extending the shunt tubing to the other side of the brain. I'm scared for her but we feel this is what needs to be done for her so she can get back to normal and be that sweet happy baby we all know and love. I've sat here thinking there should be more to say but there really isnt. I know everyone is praying for her and everything will be ok.

3 comments:

SelinaMay 04, 2011 9:32 AM
I'll be praying for you guys, Lexi! Hugs!
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JillMay 06, 2011 9:36 PM
Still thinking of you guys. Hugs!
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JennaMay 15, 2011 10:05 PM
Hi Emma
My name is Jenna and I came across your site. U are one cute, and adoreble little girl. you are a courageous, strong, determined fighter. She is an Inspirational Hero, A Brave Warrior and A Smilen Champion!
My friend is 13 and she has Spinabiffada. Her brother Mitch has Neuroblastoma.
www.miraclechamp.webs.com
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Little history..

We found out Emma has Spina bifida at our first ultra sound and we where sent to see a specialist. Our experince with this doctor was aweful, she gave us a grim outlook saying our daughter will more then likely never walk and will be mentally handicaped and should seriously consider our options of whether or not we want to continue with the pregnancy. After that day it became my mission to give her the best life I could possibly give her. That started with deciding to become a part of a study/trial called the MOM's Study (www.spinabifidamoms.com) we where selected for postnatal surgery. She was born February 11 and a week later had her shunt placed in. She has done so well, she is able to move both legs and has movement in right foot. We are truelly blessed and are looking forward to watching her grow up.